Study Title: Co-developing a study to understand knowledge, perceptions, and attitudes of Canadians towards the use of pharmacogenetic testing in mental health care
Finding psychiatric medicines that work for a child or youth is clinically challenging and can take months to years, leading to non-adherence and treatment failure. We need more prescribing strategies that can support current treatment plans and help children/youth better manage psychiatric disorders with medicine. There is growing evidence that pharmacogenetic testing, a specific type of genetic testing, can be used to personalize medication treatments based on a person’s ability to process and react to drugs.
Genomic medicine and direct-to-consumer genetic tests are becoming more common than ever before. As a result, people are now more knowledgeable and forming strong views about these tests. However, we don’t know as much about what Canadian youth with lived/living experience of mental health conditions or parents caring for youth with lived/living experience of mental health conditions think about pharmacogenetic tests. Therefore, to address this knowledge gap, we will co-develop a qualitative study protocol with youth, aged 15 to 24 years and parents of youth with neuropsychiatric disorders to understand knowledge, perceptions, and attitudes about the use of pharmacogenetic testing in mental health care.
We have formed two Research Advisory Councils, with five members each.
Finding psychiatric medicines that work for a child or youth is clinically challenging and can take months to years, leading to non-adherence and treatment failure. We need more prescribing strategies that can support current treatment plans and help children/youth better manage psychiatric disorders with medicine. There is growing evidence that pharmacogenetic testing, a specific type of genetic testing, can be used to personalize medication treatments based on a person’s ability to process and react to drugs.
Genomic medicine and direct-to-consumer genetic tests are becoming more common than ever before. As a result, people are now more knowledgeable and forming strong views about these tests. However, we don’t know as much about what Canadian youth with lived/living experience of mental health conditions or parents caring for youth with lived/living experience of mental health conditions think about pharmacogenetic tests. Therefore, to address this knowledge gap, we will co-develop a qualitative study protocol with youth, aged 15 to 24 years and parents of youth with neuropsychiatric disorders to understand knowledge, perceptions, and attitudes about the use of pharmacogenetic testing in mental health care.
We have formed two Research Advisory Councils, with five members each.
- One council will include youth (aged 15 – 24 years) with self-declared lived/living experience of mental health conditions.
- The other council will include adult parents or guardians of youth (aged 15 – 24 years) with lived/living experience of mental health conditions.
Team:
Principal Investigators:
Abdullah Al Maruf, PhD, M.Pharm (University of Manitoba)
Anna Chudyk, PhD, MSc (University of Manitoba)
Co-Investigators:
Laurence Katz, MD, FRCPC (University of Manitoba)
Cara Katz, MD, FRCPC (University of Manitoba)
Collaborator:
Brianna Hunt, MA (CHRIM)
Research Assistants:
Grace Pilkey, PharmD Student (University of Manitoba)
Sasha Kullman, PhD Student (University of Manitoba)
Nuzhat Tabassum, MSc Student (University of Manitoba)
Mahin Hasan, PhD Student (University of Manitoba)
Abdullah Al Maruf, PhD, M.Pharm (University of Manitoba)
Anna Chudyk, PhD, MSc (University of Manitoba)
Co-Investigators:
Laurence Katz, MD, FRCPC (University of Manitoba)
Cara Katz, MD, FRCPC (University of Manitoba)
Collaborator:
Brianna Hunt, MA (CHRIM)
Research Assistants:
Grace Pilkey, PharmD Student (University of Manitoba)
Sasha Kullman, PhD Student (University of Manitoba)
Nuzhat Tabassum, MSc Student (University of Manitoba)
Mahin Hasan, PhD Student (University of Manitoba)
Recruitment materials are prepared by Grace.
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