Please complete this pre-screening form if you are interested to participate in the study:
https://forms.office.com/r/45hQ4jzv2x
Study Title: Co-developing a study to understand knowledge, perceptions, and attitudes towards the use of pharmacogenetic testing in mental health care in Manitoba
Finding psychiatric medicines that work for a child or youth is clinically challenging and can take months to years, leading to non-adherence and treatment failure. We need more prescribing strategies that can support current treatment plans and help children/youth better manage psychiatric disorders with medicine. There is growing evidence that pharmacogenetic testing, a specific type of genetic testing, can be used to personalize medication treatments based on a person’s ability to process and react to drugs.
Genomic medicine and direct-to-consumer genetic tests are becoming more common than ever before. As a result, people are now more knowledgeable and forming strong views about these tests. However, we don’t know as much about what Canadian youth with lived/living experience of mental health conditions or parents caring for youth with lived/living experience of mental health conditions think about pharmacogenetic tests.
We are looking for advisory council members from Manitoba to help us co-develop a protocol (plan) for a research study. The goal of the research study will be to interview children/youth and parents of children/youth with mental health conditions in Manitoba about their knowledge, perceptions, and attitudes about the use of pharmacogenetic testing in mental health care.
We will form two Research Advisory Councils, with approximately five members each.
As an Advisory Council member, we will ask you to help us co-develop the study protocol by sharing your input on topics such as:
If you decide to participate as an Advisory Council member, you will be asked to sign a terms of reference form, complete demographic information, and attend approximately four meetings over eight months. Each meeting will last approximately two hours. You will be compensated for your time participating in the study.
Your participation is optional. Although the results of this study may be published or presented at conferences, your identity will never be revealed unless you want to be a co-author in the published materials. Finally, you may withdraw from your role on the Advisory Council at any time.
Please see the attached study poster to see if you are eligible to participate. We may conduct short interviews with you to discuss the purpose of the councils and your suitability as a potential member.
If you are interested in being a council member or in learning more about the study, please contact our Research Coordinator at [email protected] or [email protected]
Please complete this pre-screening form if you are interested to participate in the study:
https://forms.office.com/r/45hQ4jzv2x
https://forms.office.com/r/45hQ4jzv2x
Study Title: Co-developing a study to understand knowledge, perceptions, and attitudes towards the use of pharmacogenetic testing in mental health care in Manitoba
Finding psychiatric medicines that work for a child or youth is clinically challenging and can take months to years, leading to non-adherence and treatment failure. We need more prescribing strategies that can support current treatment plans and help children/youth better manage psychiatric disorders with medicine. There is growing evidence that pharmacogenetic testing, a specific type of genetic testing, can be used to personalize medication treatments based on a person’s ability to process and react to drugs.
Genomic medicine and direct-to-consumer genetic tests are becoming more common than ever before. As a result, people are now more knowledgeable and forming strong views about these tests. However, we don’t know as much about what Canadian youth with lived/living experience of mental health conditions or parents caring for youth with lived/living experience of mental health conditions think about pharmacogenetic tests.
We are looking for advisory council members from Manitoba to help us co-develop a protocol (plan) for a research study. The goal of the research study will be to interview children/youth and parents of children/youth with mental health conditions in Manitoba about their knowledge, perceptions, and attitudes about the use of pharmacogenetic testing in mental health care.
We will form two Research Advisory Councils, with approximately five members each.
- One council will include youth (aged 15 – 24 years) with self-declared lived/living experience of mental health conditions.
- The other council will include adult parents or guardians of youth (aged 15 – 24 years) with lived/living experience of mental health conditions.
As an Advisory Council member, we will ask you to help us co-develop the study protocol by sharing your input on topics such as:
- What you think the main priorities/aims of the study should be (what, specifically, do we want to find out?)
- The most important outcomes for the study (what end-product do we want to achieve?)
- The specific research questions for the study.
- How best to recruit research participants.
- What kinds of questions we should ask in the interviews with participants.
- How we should bring all the interview data together and analyze it to answer our research questions.
- The best way to share the outcomes of our research with other people (e.g., videos, posters, etc.).
If you decide to participate as an Advisory Council member, you will be asked to sign a terms of reference form, complete demographic information, and attend approximately four meetings over eight months. Each meeting will last approximately two hours. You will be compensated for your time participating in the study.
Your participation is optional. Although the results of this study may be published or presented at conferences, your identity will never be revealed unless you want to be a co-author in the published materials. Finally, you may withdraw from your role on the Advisory Council at any time.
Please see the attached study poster to see if you are eligible to participate. We may conduct short interviews with you to discuss the purpose of the councils and your suitability as a potential member.
If you are interested in being a council member or in learning more about the study, please contact our Research Coordinator at [email protected] or [email protected]
Please complete this pre-screening form if you are interested to participate in the study:
https://forms.office.com/r/45hQ4jzv2x
Team:
Principal Investigators:
Abdullah Al Maruf, PhD, M.Pharm (University of Manitoba)
Anna Chudyk, PhD, MSc (University of Manitoba)
Co-Investigators:
Laurence Katz, MD, FRCPC (University of Manitoba)
Cara Katz, MD, FRCPC (University of Manitoba)
Collaborator:
Brianna Hunt, MA (CHRIM)
Research Coordinators:
Grace Pilkey, PharmD Student (University of Manitoba)
Sasha Kullman, PhD Student (University of Manitoba)
Nuzhat Tabassum, MSc Student (University of Manitoba)
Abdullah Al Maruf, PhD, M.Pharm (University of Manitoba)
Anna Chudyk, PhD, MSc (University of Manitoba)
Co-Investigators:
Laurence Katz, MD, FRCPC (University of Manitoba)
Cara Katz, MD, FRCPC (University of Manitoba)
Collaborator:
Brianna Hunt, MA (CHRIM)
Research Coordinators:
Grace Pilkey, PharmD Student (University of Manitoba)
Sasha Kullman, PhD Student (University of Manitoba)
Nuzhat Tabassum, MSc Student (University of Manitoba)
Recruitment materials are prepared by Grace.
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